Nadav, the wild one!

Nadav looks like a healthy happy 18 month old. He likes to play with dinosaurs, fold origami, and spend time with his brothers and sisters.
But Nadav isn't 18 months old. He turned 5 on the 20th of April. So weighing in at 27 pounds is not a good thing.
Nadav is that small because he has EE. This means that the white cells in his body attack his eosphagus every time he eats. This causes him extreme pain.Yes, he is allergic to food. All food.
 EE also causes "failure to thrive" as he can't get the nutrients he needs to develop.He can't speak, and is not very coordinated(to put it mildly).  He has some sensory issues. Just smelling something cooking next door can cause him to vomit uncontrollably.
We are not sure what kind of life he'll have as he gets older.For now,every day for him is a struggle.Very few children have this, and even fewer children of color. It seems like a frustrating disease,with everything different for every child. Some can eat "safe" foods, some can't. Some have no issues other than the EE itself, others have multiple disabilities and illnesses. Nadav has an extreme form that involves many hospital trips, doctor visits and every type of therapist you can think of. His life has been vomit, hospital staff, terapy sessions and things that 5 year olds shouldn't even know.